fbpx

GBM Awareness Day is July 17. Join us in raising awareness all month long! Learn more.

MindMatters White Logo

Sign up for our bi-monthly email to get the latest news on treatments, support, and stories from the brain tumor community.

Subscribe to MindMatters

My Journey with a Craniopharyngioma: Facing Life’s Curveballs with Strength and Faith

Gabe Rodriguez

Life has a way of surprising us when we least expect it. For me, that surprise came in 2018. Up until then, everything was perfect: a wonderful marriage, four amazing kids, a fulfilling career, and the kind of happiness you only dream about. Then, out of nowhere, life threw me a curveball.

I was diagnosed with a craniopharyngioma, a rare primary brain tumor located near the pituitary stalk. I had always been healthy—so where on earth did this come from? It felt like my entire world was flipped upside down. But as I’ve come to realize, even in the face of challenges, life offers us the opportunity to rise above.

A New Battle: My First Surgery

In 2019, I underwent transsphenoidal surgery to remove the tumor. While the surgery was successful, the tumor had destroyed my pituitary gland, and it had to be removed as well. Adjusting to life after surgery wasn’t easy, but I focused on recovery with the support of my family, friends, and faith.

Just when I thought I was in the clear, life delivered another curveball. Almost three years later, the tumor was back in the same place. Once again, I found myself preparing for a battle I thought I had already won.

The Second Round: A Craniotomy

In January 2023, I underwent a craniotomy to remove the tumor for the second time. Recovery was grueling, but my determination never wavered. I leaned on my support system and faith to keep me grounded and hopeful. I thought to myself, I’ve beaten this once; I can beat it again.

But life had other plans.

The Third Challenge: Proton Beam Therapy

This stubborn tumor returned for a third time. As I write this, I’m in the midst of a six-week course of proton beam therapy, hoping this will be the treatment that finally eradicates it for good. Despite everything, I refuse to let this thing win. I’ve beaten it twice before, and I am determined to win this fight once and for all.

Finding Strength in Faith and Family

When I was first diagnosed, I used to ask, Why me? But over time, my perspective shifted. Maybe I was chosen to face this challenge because I’m strong enough to fight it. I’ve even thought, If this had to happen to someone in my family, I’d want it to be me. I couldn’t bear to see my wife or kids go through this. In a way, my prayers have been answered—I’ve taken this burden so they don’t have to.

My faith has been my anchor through this journey. It helps me find peace in the chaos and strength when I feel weak. My family, friends, and coworkers have been an incredible support system, cheering me on every step of the way. Together, they remind me why this fight is worth it.

Ready for Whatever Comes Next

Life can keep throwing curveballs at me because I’m ready. I’ve got my bat pointed to the right-field boxes, and I’m swinging for the fences. This tumor may have tested me, but it hasn’t beaten me. I’m determined to turn every challenge into a home run and show that no matter how tough the fight, hope and resilience can carry you through.To anyone else facing a similar battle: keep fighting. You are stronger than you realize, and there’s always hope. Life may throw you curveballs, but it’s up to you to hit them out of the park.


 

Make a Difference TOday

Your generosity fuels progress. The American Brain Tumor Association has already invested over $35 million in life-changing brain tumor research, leading to breakthroughs like the FDA approval of vorasidenib, a groundbreaking treatment for low-grade glioma.

Through our Meet Hope Head On campaign, we’re not just funding critical research—we’re also providing free resources and support to patients and caregivers navigating the challenges of a brain tumor diagnosis.

Share This Content:

Share:

More Posts

Upcoming Events

Educational Resources

Always free for patients & caregivers

Gina & Tim Abbas
Caregiver & Anaplastic Astrocytoma Survivor

Double Your Impact for Brain Tumor Families

Donate now and your gift will be matched thanks to the Will Hicks Charitable Association.