Share Your Story
Your story is powerful and can help raise awareness and support for others facing similar challenges. By sharing your experience, you bring hope to others and show them that they are not alone.
Story submissions should be fewer than 1,000 words. We encourage you to focus on how having a brain tumor has impacted your life or what you want others to understand about brain tumors. Fields marked with an asterisk (*) are required.
Patient & Caregiver Stories
My Journey Through the Storm: A New Life After Brain Cancer
by Kelsie Barrie Moving to a new city is supposed to be an adventure, full of promise and possibility. But for me, my fresh start in Las Vegas turned into […]
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Migraine to Grade II Brain Tumor – Journey of my survival and Ph. D
by Nidhi Rakshikar From Brain Tumor Misdiagnosis to Ph.D.: My Inspiring Journey of Resilience Life has a way of testing our strength in ways we can’t imagine. My story began […]
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My Journey with a Craniopharyngioma: Facing Life’s Curveballs with Strength and Faith
Life has a way of surprising us when we least expect it. For me, that surprise came in 2018. Up until then, everything was perfect: a wonderful marriage, four amazing […]
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I Feel Lucky
by Ben Stein-Lobovits I had it all—a marriage, a new dog, a house. Then, just a week before my 32nd birthday, I was diagnosed with a high-grade brainstem glioma. I […]
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A Journey of Resilience, Gratitude, and Growth
by Charlotte Amerling Life has a way of taking surprising turns, sometimes bringing challenges that transform us in unexpected ways. Nineteen years ago, at the age of 26, I was […]
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Matthew Zachary – A 29-Year Brain Cancer Survivor Advocating for Change
Inspiring and resilient, Matthew Zachary is a 29-year brain cancer survivor who has dedicated his life to advocating for young adults affected by cancer. His story is not only one […]
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Former ESPN Reporter and Fox News Contributor Britt McHenry shares her story of hope and healing: Finding Myself Again
by Britt McHenry As I was wheeled into the operating room at Johns Hopkins on March 4, 2020 for an eight-hour craniotomy, for just a second I thought, “I don’t […]
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Be Like Brad
by Tia Mazzone In October 2022, Brad’s life took a drastic turn when he started experiencing intense headaches. Initially, these symptoms were attributed to a sinus infection. His wife, Tia, […]
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My Journey with a Brain Tumor Diagnosis During the Pandemic
by Lynn Wynn In early 2020, as the world was shutting down, my life took an unexpected turn when I was diagnosed with a brain tumor on the left side […]
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Embracing Anticipatory Grief: Our Journey with Glioblastoma
by Debbie Drews Embracing Anticipatory Grief: Our Journey with Glioblastoma In 2022, my husband Tom, my partner of 20 years, was diagnosed with Glioblastoma (GBM), a form of brain cancer […]
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Processing Our Brain Cancer Journey Through Song
Juliann before her biopsy in 2019 Juliann and her sister-in-law, Karli, who joined in shaving her head in solidarity and support A recent photo of Scott and his family on
The Will to Defeat GBM
By: Dan Zappa, Glioblastoma Survivor There is no routine for a military family! Our young family was making plans for a return to “normal life” when I came home from
Not Misery, But a Mission
My name is Chris and I am 44 years old. As of May 2022, I will also be a 44-year survivor of a brain tumor. Yes, I had my tumor