Share Your Story
Your story is powerful and can help raise awareness and support for others facing similar challenges. By sharing your experience, you bring hope to others and show them that they are not alone.
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Story submissions should be fewer than 1,000 words. We encourage you to focus on how having a brain tumor has impacted your life or what you want others to understand about brain tumors. Fields marked with an asterisk (*) are required.
Patient & Caregiver Stories
Story Submissions Disclaimer
The stories featured on this page are submitted by patients, caregivers, and families who have chosen to share their personal experiences. These stories reflect the individual perspectives and opinions of the authors and do not necessarily represent the views, beliefs, or policies of the American Brain Tumor Association (ABTA).
The ABTA does not independently verify the details of these stories and cannot guarantee their accuracy or completeness. The information shared in these stories should not be considered as medical advice or a substitute for professional consultation with qualified healthcare providers.
By reading or submitting content to this page, you acknowledge and agree that the ABTA is not responsible for any decisions or actions taken based on the information provided in these stories.
If you have concerns about any content on this page, please contact us at info@abta.org
Giving Back with Your Time & Energy
ABTA volunteers drive our mission, bringing promise to patients and families. This National Volunteer Appreciation Week (April 20-26, 2025), we celebrate and express our gratitude for all the individuals who […]
Read MoreAvid Runner Springs into Action After Glioblastoma Diagnosis
It’s spring – a time to rejuvenate, refresh and take action. Learn how one runner’s glioblastoma diagnosis became the catalyst for resilience, hope and perseverance. A Shocking Wake-Up Call Nicole […]
Read MoreAdvancing Treatment Options for Primary CNS Lymphoma
TakeAim Lymphoma – Now Enrolling ** Sponsored by Curis. This content is not an endorsement from the ABTA.** Primary CNS Lymphoma (PCNSL) Curis is a biopharmaceutical company dedicated to developing […]
Read MoreOut of the Ashes: Undergoing Chemoradiation for Glioblastoma Treatment during the Devastating Pacific Palisades Fire in Southern California
** Sponsored by Pacific Neuroscience Institute (PNI). This content is not an endorsement from the ABTA.** By Emmaline Mauitson, MPAP, PA-C James, 75, was vacationing in Hawaii with his wife […]
Read MoreA Serendipitous Love Story
Some love stories are written in the stars, while others begin with an unexpected knock on the wrong door. That’s how Scott and Steffanie’s journey started—by chance, or perhaps fate. […]
Read MoreFinding Strength and Peace After a Glioblastoma Diagnosis: My Journey to Healing
by Amber Gardenhire Being diagnosed with stage IV glioblastoma (GBM) eight years ago changed everything. My doctors are still amazed that I haven’t had a recurrence, and I’m beyond grateful. […]
Read MoreMy Meningioma Journey: Finding Hope and Purpose During the Pandemic
by Lynn Wynn When the pandemic began in 2020, my life changed in ways I could have never imagined. I was diagnosed with a benign brain tumor on the left […]
Read MoreCaroline Williams’ Journey: A Brain Tumor Diagnosis During Pregnancy
by Caroline Williams In March 2022, Caroline Williams began experiencing symptoms she thought were just “pregnancy brain.” At 17 weeks pregnant, her struggles with speaking, reading, and writing seemed like […]
Read MoreHow I Meet Hope Head On: My Journey with a Meningioma
by Justine LaClair Facing a brain tumor diagnosis is a challenge I never expected, but my story is one of resilience, hope, and determination. In 2013, I had a large […]
Read MoreFrom Tumor to Triumph: How a Meningioma Survivor is Conquering a 28-Mile Challenge with Heart and Hope
If your New Year’s resolution is to increase or improve your physical activity and remain healthy as possible, then don’t miss the ABTA Challenge in February. Meet one brain tumor […]
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Finding My Way Back Home
I have a question and see if this has ever applied to you: Have you ever felt that you’ve failed at something? I mean, failed so badly on every level
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#fightlikeagirl
I’ve lived with anaplastic brain tumor since January 2014. So no surgery to remove it; only chemotherapy and radiation and a pause for sinus wall surgery. After that, my tumor
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Just a Sinus Infection!
I once went to the doctor for an ear ache. The doctor said you don’t have an ear ache. It looks like a sinus infection. Here take this antibiotic. Not