by Ben Stein-Lobovits
I had it all—a marriage, a new dog, a house. Then, just a week before my 32nd birthday, I was diagnosed with a high-grade brainstem glioma. I often say I turned “thirty-tumor,” as this rare cancer, usually seen in children, changed everything.
Living with this diagnosis has impacted every part of my life, from balance and memory to dexterity and cognition. Every task became a little harder, each moment a little more precious. Now, as I approach seven years of survivorship—a milestone I once thought unreachable—my life feels like an unexpected gift.
My greatest joy is my family, my wife, and our two beautiful daughters, who fill my life with hope every day. This experience has also inspired me to support others in the brain tumor community, particularly those newly diagnosed who feel the same fear I once did. Helping others find strength and comfort has become deeply meaningful, a way of giving back that brings me true fulfillment.
I now view my journey as a gift, a unique opportunity to treasure time with my family and continue supporting others. For however long I can, I’ll keep doing just that.
About Meet Hope Head On
Because of the generous support from people like you, the ABTA has given over $35 million for brain tumor research. The ABTA’s campaign, “Meet Hope Head On,” created for our 50th anniversary, is focused on raising $50 million, in part to fund critical brain tumor research. This campaign is vital for continuing the kind of work that led to the recent FDA approval of vorasidenib, a breakthrough treatment for low-grade glioma.
