Tuxes, dresses, flowers, and a tall, pretty cake. It’s a wedding between Joey and Haley who started their relationship five years ago. While considering the complex details of their special day, the one decision they both knew from the start was no presents.
“We’re thankful for our family and friends to join us on our special day, but we don’t need extra things that we can get ourselves,” said Haley. “So, in lieu of a registry, we asked our guests to donate to the American Brain Tumor Association in honor of Joey’s mom, Susan.”
Haley and Joey designated guests to donate to the ABTA through the Fundraise Your Way Special Occasion program – a customizable webpage that allows individuals and groups to fundraise for ABTA brain tumor research and patient programs through unique and creative occasions, such as weddings, birthdays, graduations or holidays.
Making Sure Mom is at the Wedding
Just months before starting their relationship five years ago, Joey’s mom passed away from glioblastoma (GBM). Joey remembers his Mom as a selfless teacher who loved to learn and help her students reach their potential. While growing up, Joey saw his mom tutor students at their kitchen table for hours after school.
“She made a difference in so many of her student’s lives and loved to watch them excel,” recalls Joey. “From small acts of kindness like penning a letter to a friend, preparing a meal for a family in need, or delivering flowers to seniors, she was always doing things for others.”
Susan’s giving nature made a lasting impression on her son, who now serves as a captain in the U.S. military. Since joining the military, Joey has been deployed twice to support military operations in Europe and the Middle East.
While talking with this loving couple, it’s clear that service and selflessness is at the heart of their relationship. They felt that their wedding was a chance to get hundreds of their family and friends together and celebrate the spirit of giving in honor of Joey’s mom.
“If I could give Haley one gift, it would be to meet my Mom, but I know that she is watching over us,” said Joey. “She probably had the best seat in the house at our wedding. Her presence was truly felt.”
Finding Hope
When asked about the motivation for participating in the ABTA Fundraise Your Way program, they felt that the ABTA provided a wide range of resources and services that help so many patients and families.
“Having lost Susan just five years ago, we thought our efforts could bring solace to other families,” said Haley. “It’s the least that we could do to make an impact on this devastating disease.”
“Even in the darkest times, there’s hope,” Joey shared. “Our hope is that families and patients impacted by a brain tumor can find hope as well.”
Learn more about ABTA Fundraise Your Way program or contact Kitty Snow, ABTA community manager, ksnow@abta.org or 773-577-8766.
About Meet Hope Head On
Because of the generous support from people like you, the ABTA has given over $35 million for brain tumor research. The ABTA’s campaign, “Meet Hope Head On,” created for our 50th anniversary, is focused on raising $50 million, in part to fund critical brain tumor research. This campaign is vital for continuing the kind of work that led to the recent FDA approval of vorasidenib, a breakthrough treatment for low-grade glioma.
