Metastatic Brain Tumor Collaborative
As the leader of brain tumor education, support services and research, the ABTA created the Metastatic Brain Tumor Collaborative to inform, support and empower patients diagnosed with a metastatic brain tumor.
Metastatic brain tumors start somewhere else in your body and travel to the brain. Lung, breast, kidney, colon, and melanoma (skin) cancers are typically the most common cancers that spread to the brain.
Metastatic brain tumors are the most common type of brain tumors in adults. Current estimates suggest approximately 200,000 adults are diagnosed annually in the U.S. And unfortunately, the average prognosis following diagnosis is only a few months.
Discovering that there are no patient advocacy organizations dedicated to metastatic brain tumor education and support, the American Brain Tumor Association decided more needs to be done to serve this patient population.
Our Action Plan
Advisors
The Metastatic Brain Tumor Collaborative is guided by national medical experts. Meet our advisors.
Learnings and Outcomes
A first-of-its-kind survey of patients, caregivers and physicians on the diagnosis and treatment of brain metastases, conducted by the ABTA as part of our Metastatic Brain Tumor Collaboration, revealed disparities in practice patterns and communication around metastatic brain tumors.
These data highlight the need to increase accessibility to clinical trials, establish clear standards of care and improve physician-patient communication reflective of the unique needs of patients with brain metastases.
The survey results have been published in the journal Neuro-Oncology Practice.
Free Educational Resources
Metastatic Brain Tumors Educational Brochure
Learn about diagnosis, treatment options, prognosis and resources.
Insight Into the Brain Metastases Journey
This recorded program informs and empowers metastatic patients and their caregivers to make decisions about the diagnosis, treatment and care of a brain metastasis.
Metastatic Brain Tumors – Questions to Ask Your Doctor
Questions to ask your doctor when newly diagnosed.
Partners
About Meet Hope Head On
Because of the generous support from people like you, the ABTA has given over $35 million for brain tumor research. The ABTA’s campaign, “Meet Hope Head On,” created for our 50th anniversary, is focused on raising $50 million, in part to fund critical brain tumor research. This campaign is vital for continuing the kind of work that led to the recent FDA approval of vorasidenib, a breakthrough treatment for low-grade glioma.
