Inspiring and resilient, Matthew Zachary is a 29-year brain cancer survivor who has dedicated his life to advocating for young adults affected by cancer. His story is not only one of personal triumph but also a testimony to the power of community, advocacy, and determination. Here is a synopsis of his Keynote Address at the 2024 ABTA National Conference.
Early Life and Diagnosis
Born and raised in Brooklyn, Matthew’s passion for music started at a young age. By the time he reached college at Binghamton University, he was thriving as a composer and musician. But, like many cancer survivors, his life took a drastic turn when he was diagnosed with medulloblastoma, a brain tumor, at just 21 years old. What started as strange tingling in his left hand soon revealed a life-threatening condition.
Despite the shock, Matthew’s response was both powerful and brave. While grappling with his diagnosis, he made the tough decision to reject chemotherapy that could have robbed him of his ability to play music. With guidance from his godfather, Dr. Jay Tishfield, a pioneer in chemotherapy, Matthew chose to preserve his passion and talent, even if it meant risking his life.
Advocacy and Empowerment
After surviving brain cancer, Matthew channeled his experiences into advocacy, knowing firsthand the challenges young adults face with cancer. He founded Stupid Cancer, now the world’s largest Adolescent and Young Adult (AYA) cancer community, which provides vital resources, support, and connection for young adults battling cancer. His mission was clear: no young person should have to go through cancer without access to the right information, support, and care.
Over the years, Matthew has become a leading voice in the AYA community, hosting shows like the “Stupid Cancer Show” and producing award-winning documentaries like “The Cancer Mavericks.” His work has helped bring the challenges of young adult cancer survivors to the forefront, driving real change in how society views and treats cancer patients.
Lessons from a Survivor
Matthew’s story isn’t just about cancer; it’s about the importance of advocacy, self-empowerment, and knowing your rights as a patient. During his journey, he faced an uphill battle—not only against the disease but against a healthcare system that didn’t always provide the answers or options he needed.
Matthew emphasizes the significance of asking “why”—challenging healthcare providers to explain treatments, advocate for better options, and stand up for yourself when the answers don’t add up. His experience shows that sometimes, it’s not just the cancer that’s the battle but navigating the healthcare system itself.
Looking Ahead: Advocacy for the Future
As an advocate, Matthew continues to work towards a future where cancer patients, especially young adults, have better access to the care and resources they need. His vision is clear: better access to healthcare, improved mental health support, and more policies that protect the rights of cancer patients and survivors.
Through his advocacy work, Matthew has been a part of transformative changes, such as improving access to fertility preservation and survivor benefits, and he continues to push for more. His hope for the future? A healthcare system that prioritizes patient quality of life, listens to their needs, and ensures everyone has access to the care they deserve.
Conclusion
Matthew Zachary’s story is a reminder of the power of resilience and the impact one person can make. From his personal battle with brain cancer to his ongoing work as an advocate, Matthew has become a guiding light for thousands of young adults affected by cancer. His journey teaches us the importance of asking questions, demanding better care, and, above all, never giving up on what makes life worth living.
If you or someone you know is dealing with cancer, remember that resources like Stupid Cancer and organizations like the American Brain Tumor Association are here to support you. You are never alone in this fight.
